Guidelines for providing comprehensive and integrated support to patients with gynecological cancer

The Spanish Society of Medical Oncology (SEOM) estimates that during 2024, 13,280 new cases of ovarian, endometrial and cervical cancer will be diagnosed in our country. GSK today introduced accompanying guidance, driven by the need to offer comprehensive and comprehensive support that takes into account both the clinical aspects of the disease and the needs of patients with gynecological cancer.

The project “My name is also Esperanza” was developed by 11 medical professionals from different specialties, including four oncologists, and received the support of the patient associations AMOH (Association of Hereditary Breast and Ovarian Pathology) and ASACO (Association of People Suffering from Ovarian Cancer) to provide a reference resource for patients and their families that includes information about the pathology and relevant topics related to the disease and its treatment. The presentation in Madrid, moderated by Sandra Ibarra, a benchmark in cancer visibility, included four panels reflecting the natural stages of the cancer process: “fear”, “loneliness”, “separation”

And “hope”.

“This guide to post-diagnosis care and support is based on the understanding that every woman has a unique journey in her cancer experience. This guide not only provides practical advice, but also represents a commitment to women who have gone through this process. supporting them with self-care resources that span the body and mind, and reminding them that they are not alone on their journey to recovery.”explained Julia Ruiz, oncologist at the Virgen de las Nieves University Hospital in Granada and medical director of the Onconature Center for Integrative Oncology.

During treatment, patients with gynecological cancer may experience a variety of physical changes, such as extreme fatigue, hormonal changes and pain, which affect self-esteem and personal perception. These aspects are not only a physical problem, but also an emotional one, which can be expressed in anxiety, sadness and sometimes isolation. One of the primary goals of My Name is Esperanza is to provide guidance on self-care and strategies to help patients adapt to these changes, reconnect with their personal well-being during treatment, and improve their quality of life. For Dr. Ruiz, “Comprehensive care is needed, which includes nutrition tailored to individual needs, moderate exercise to maintain mobility and energy, pelvic floor physical therapy and stress management practices such as mindfulness or yoga. In addition, psycho-emotional support is necessary as it allows patients to express their emotions, reduce fear and develop resilience.

The participation of the AMOH and ASACO patient associations was fundamental in the development of this guide, particularly when it comes to communicating the experiences and needs of patients, as well as their families and friends. So, in addition to detailed information about gynecological cancer and its treatment, the document also includes support resources, including practical tips and advice on how to safely incorporate exercise into your daily routine, what diet is most suitable, how to manage emotions or how to care for a loved one with cancer, among other aspects.

The patient experiences many fears and uncertainties from the moment she is diagnosed with cancer. “For this reason, it is so important to have material that will help us better understand our situation, know that we are not alone and what tools are within our reach in order to be able to maintain an adequate quality of life during this process.”assured Iron Charo, President of ASACOwho also emphasized the need to work towards achieving good communication with the medical team. Because although doctor-patient communication has changed significantly, it is still necessary. “remove barriers” especially in everything related to the emotional state and sexual life of patients, “surrounded by taboos that prevent truly open conversation.”

Hereditary gynecological cancer, and in particular ovarian cancer, which is most susceptible to inherited genetic mutations, also has a special section in this guide. In this sense, Marisa Cotes, AMOH Presidentemphasized the importance “genetic counseling or advice” explained in detail in the document: “Although there is no effective early detection, knowledge of the mutation allows people to have more frequent screenings and make preventative decisions, such as removing ovaries and fallopian tubes after motherhood. In addition, genetic counseling helps plan individual treatment and inform family members. about your risk, trying to save as many lives as possible.

Treatments for gynecological cancer have improved in recent years thanks to the development of immunotherapy and precision medicine, which have opened new possibilities and new hope by extending patients’ lives, reducing side effects and improving their quality of life. “At GSK, we support knowledge and prevention of this disease through continuous research, development and innovation, driven by commitment and the belief that hope never becomes chronic. Hope is spread through continuous and collective efforts. Because together we have the power to transform cancer into hope.”assured Leticia de Lujan, Medical Director of the Department of Oncohematology, GSK Spain.