ALMERIA, May 11. (EUROPE PRESS) –
This Friday, Espacio Alma celebrated World Lupus Day, a disease that affects more than five million people in the world and 100,000 in Spain, with an estimated 1,000 living in the province of Almeria.
Organized by the Autoimmune and Lupus Association of Almeria (ALAL), it received the support of the Almeria City Council, the Provincial Council, the Junta of Andalusia and FAAM, according to separate notes from the Provincial Council and the Council.
The central event was the reading of the Manifesto, in which they expressed their needs and the need to continue research into this disease.
In addition, the importance of identifying autoimmune chronic inflammatory diseases that present with flares and invisible symptoms such as asthenia, pain, and photosensitivity was emphasized.
During the event, certificates of appreciation were presented to Julio García Feito, Physician of the Rheumatology Department of the Torrecardenas University Hospital; Matilda Garro Lara, nurse in the rheumatology department of the CPE of the University Hospital of Torrecardenas; and Maria Escorisa García, founding partner of ALAL.
ALAL President Liz Lucero Juanay thanked all the administrations gathered at the event and highlighted the work of the association, which brings together more than one hundred members.
Paola Lainez, Councilor for Families, Inclusion and Equality at Almeria City Council, said that “lupus not only affects the individual, but also those close to them, and it is important that we as a community are united in our support.” “Today is a day to reflect on the challenges faced by people living with this autoimmune disease and to celebrate their strength, resilience and determination,” he said.
Additionally, the advisor added that “it is critical that we continue to work together to improve research, diagnosis and treatment of lupus, and to increase understanding and compassion for those who suffer from it.” “On the part of the Almería City Council, we support them, firstly through their headquarters, which is located in Espacio Alma, but also by collaborating in their activities and training programs,” he noted.
Vice President and Deputy Social Security Angel Escobar stressed the importance of this international day to “make visible and raise awareness among the population of this chronic disease that affects a large number of people: the attention given to it is vital. . victims to provide them with a better quality of life.
“I want to thank all the people who are responsible for providing them with the best care, such as healthcare workers and family members. We must value family because it is the fundamental pillar that helps them improve their quality of life,” Escobar added. .
Territorial delegate of the Health and Consumer Affairs Council, Juan de la Cruz Belmonte, stressed the importance of “raising awareness through events like the one we are celebrating today about the existence of this chronic disease and the importance of treating it.” .” to provide affected people with a better quality of life.
Belmonte recalled the progress made through the Organic Disability Working Group, of which ALAL is a member, “where we work through our hospitals to understand the basic health needs of different groups.”
FAAM President Valentin Sola praised “the work done by the association to raise awareness and awareness about a disease that is little known and when you are diagnosed with it, you don’t know exactly what to do.” “This association, which is integrated into FAAM, also carries out very important work in the field of psychological and social assistance, in addition to a program of master classes and joint leisure activities, for which I want to congratulate them,” he noted.