How do they fight the dragon? Dermatomyositis in networks
Currently a large number rare diseases They need to be made visible to bring about more research and advancements. This will improve the lives of a lot of people. The good news is that today, social media allows messages about overcoming or justifying all these diseases to spread throughout the world.
One of them is juvenile dermatomyositis, a rare inflammatory pathology characterized by muscle weakness and a peculiar skin rash. In children, it usually appears between the ages of five and 15 years. In order to make this condition visible, every April 23rd National Juvenile Dermatomyositis Day. Thus, social media They were filled with messages of support.
Through social media, ANADEJU launched a digital campaign targeting survivors, family members and friends of JSD patients.
On the one hand, from ANADEHU Association And Spanish Society of Rheumatology (BE) emphasis was placed on the need to increase awareness of the disease, as well as conduct more research projects and provide interdisciplinary care.
Thus, through social media from ANADEJU A digital campaign was launched targeting victims, family members and friends of patients with DMZH, can anyone send a short video with commentary of them fighting a dragon? and including the hashtag #miLuchaDMJ.
A competition will be held among all participating profiles and the video with the most likes on instagram will become the owner of tickets for two (one day) to an amusement park in the city. SpainThere are several options to choose from.
In this context BE repeated the message from EFE health in X, which provides basic information about this disease. “This is an inflammatory autoimmune disease in children and adolescents, it affects the skin and muscle tissue, and some of its manifestations are fatigue, pain or contractures,” you can read here. In its turn, ANADEJU stated through his account in Xthat “knowledge about DMZH and commit to conducting further research as required BE“
“The cause is currently unknown, but it is related to genetic and environmental factors that lead to the disease.”
dermatomyositis This is a type of inflammatory myopathy that primarily affects the skin and stretched muscle tissue. In accordance with Spanish Society of Rheumatologyapproximately 20% of all dermatomyositis They make their debut in pediatric age with a peak incidence between 5 and 14 years. Inflammation of these organs, caused by the patient’s own immune system, leads to the appearance of typical skin lesions or muscle weakness.
Except Leon Association of Rare Diseases (ALLER), shared: “The cause is currently unknown, but it is associated with genetic and environmental factors that lead to the disease. The incidence is estimated at three or four cases per million children per year.”